EB Awareness Week

This EB awareness week. Epidermolysis Bullosa ("EB") is a devastating disorder that effects children from birth. These children are known as "butterfly children" because their skin is as delicate as a butterfly's wing. The slightest touch or friction of the skin will cause it to blister or shear off, causing these children to be in chronic pain. Please read below for more info!! Awareness = Funding = Research = Cure! There is a little girl in town that has this. Her sister is in T's Girl scout troop. At their school they all wore purple today for awareness.